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TitleManagement of Prader-Willi Syndrome [electronic resource] : Under the Sponsorship of The Prader-Willi Syndrome Association / edited by Louise R. Greenswag, Randell C. Alexander
ImprintNew York, NY : Springer US, 1988
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Descript XIX, 310p. 41 illus. online resource


Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach


I Physiological and Genetics Considerations -- 1 Overview -- 2 Differential Diagnosis in Prader-Willi Syndrome -- 3 Hypogonadism and Osteoporosis -- 4 Genetics Evaluation and Counseling for Prader-Willi Syndrome -- II A Case Presentation -- 5 A Case Study: A Chronology of Hope -- 6 A Team Approach to Case Management -- 7 Medical and Nursing Interventions -- III The Interdisciplinary Process -- 8 Dental Manifestations and Management -- 9 Nutritional Management -- 10 Psychological and Behavioral Management -- 11 Education of the Child with Prader-Willi Syndrome -- 12 Speech and Language Development -- 13 Physical and Occupational Therapy for Prader-Willi Syndrome -- 14 Vocational Concepts in Prader-Willi Syndrome -- 15 The Role of the Social Worker -- IV The Socialization Process -- 16 Social Skills Training -- 17 Understanding Psychosexuality -- 18 A Parentโ{128}{153}s Point of View -- V Delivery of Services -- 19 Advocacy and Change: A Primer for Parents -- 20 Residential Programs for Individuals with Prader-Willi Syndrome -- 21 A National Parent Network: The Prader-Willi Syndrome Association -- Suggested Readings -- Appendices

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